Heart Trials currently running in USA

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Ozchrissy
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Heart Trials currently running in USA

Post by Ozchrissy » December 19th, 2015, 10:52 am

These say for Cardiomyopathy, and I am sure there are plenty of our members that come into the category. Check these out, some may be suitable. The first one I have picked out as it is so exciting. A TRIAL FOR STEM CELLS.

https://www.centerwatch.com/clinical-tr ... yID=188858

https://www.centerwatch.com/clinical-tr ... iomyopathy
“I am not what happened to me, I am what I choose to become.” Carl Jung

Diagnosed with cardiomyopathy in 10/99
LBBB & VT diagnosed Feb 06
Guidant Biventricular Pacer ICD inserted Feb 06: Boston Scientific Incepta CRT-D inserted May, 2012
Oesophageal Cancer, 2012, Gall Bladder & Septicemia 2014 resulting in VFib and severe heart damage
Bare Metal Stent May, 2012 Mitral Valve replaced 2015
Meds: Entresto, Bicard, Coralan, Eurtorxsiq, Frusehexl, Spiractin, Sigmaxin, Creon, Warfarin,
Appropriate Shocks for Ventricular VFib.

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freckles1880
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Re: Heart Trials currently running in USA

Post by freckles1880 » December 19th, 2015, 4:04 pm

Thanks, But when I read the first one I am not sure if I have enough issues. At least I'm still within the age limits and still alive, so they say.

wavhi
Bob

Medtronic-Visia AF implanted 7-8-2016 stayed with the with 6947 Sprint Quattro Secure lead. Original ICD implant 2-4-2009. ICD turned off 10-6-17 as stage 4 lung cancer taking over.
Major heart attack, carcinogenic shock and quad bypass 10-13-08 post myocardial infarction, old inferior MI complicated by shock and CHF, combined, Atherosclerosis, abdominal aortic Aneurysm, Seroma 7 cm, left leg. Stent in the left main vein 10-7-2014

My "Wardens" are my bride of 54+ years and my daughters.

slk123
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Re: Heart Trials currently running in USA

Post by slk123 » December 20th, 2015, 10:01 am

Too bad I didn't see anything for LBBB. I think there's not enough information out there on it and there's so much more we need to know. Even the LBBB FB group doesn't know very much at all. Posts on that page basically dealt with how people feel and how they are trying to live. There's really nothing about what LBBB is, why we have it, how it affects the body, etc. So frustrating!!!
Best wishes,
Stacey

CHF Jan 2016
ICD Nov 2014
LBBB Nov 2014
Sudden cardiac arrest Nov 2014
Arrhythmia Aug 1982

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Ozchrissy
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Re: Heart Trials currently running in USA

Post by Ozchrissy » December 20th, 2015, 9:26 pm

I agree Stacey, there is not a lot of stuff out there. I did however find a great ANIMATED one showing what happens, and guess what, I can't find it again. moodbad moodbad moodbad
“I am not what happened to me, I am what I choose to become.” Carl Jung

Diagnosed with cardiomyopathy in 10/99
LBBB & VT diagnosed Feb 06
Guidant Biventricular Pacer ICD inserted Feb 06: Boston Scientific Incepta CRT-D inserted May, 2012
Oesophageal Cancer, 2012, Gall Bladder & Septicemia 2014 resulting in VFib and severe heart damage
Bare Metal Stent May, 2012 Mitral Valve replaced 2015
Meds: Entresto, Bicard, Coralan, Eurtorxsiq, Frusehexl, Spiractin, Sigmaxin, Creon, Warfarin,
Appropriate Shocks for Ventricular VFib.

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TruckerRon
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Re: Heart Trials currently running in USA

Post by TruckerRon » December 20th, 2015, 10:32 pm

Ozchrissy wrote:I agree Stacey, there is not a lot of stuff out there. I did however find a great ANIMATED one showing what happens, and guess what, I can't find it again. moodbad moodbad moodbad
If you go to YouTube and search for "heart arrhythmia dance" you'll find several... maybe even the one you previously found.
TruckerRon -- Received Minion I on 17 Sep 2009, Minion II on 26 Jan 2015

Non-ischemic cardiomyopathy
Medtronic Viva XT CRT-D
No shocks yet...
My intro is at: http://www.icdsupportgroup.org/board/vi ... 099#p57099

slk123
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Re: Heart Trials currently running in USA

Post by slk123 » December 21st, 2015, 11:36 am

I went out to youtube and found a good video describing the ECG and 5 criteria the doctors look for. What I'd like to find is information about what it does to the body, the symptoms, how people feel because of it; how it limits what we can and can't do; etc. That's why I joined the LBBB fb group, but didn't get much input from the group, let alone anything useful, so have subsequently left it.

I am to the point where I believe no matter what heart condition a person has, our symptoms are all so similar that I can say my heart is the reason I have shortness of breath, dizziness, fatigue, etc.
Best wishes,
Stacey

CHF Jan 2016
ICD Nov 2014
LBBB Nov 2014
Sudden cardiac arrest Nov 2014
Arrhythmia Aug 1982

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ROBO Pop
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Re: Heart Trials currently running in USA

Post by ROBO Pop » December 21st, 2015, 5:41 pm

personally I prefer the Pistorius or Affluenza Teen trial, more entertaining
Broken Heart
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mcmoyer
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Re: Heart Trials currently running in USA

Post by mcmoyer » December 23rd, 2015, 9:30 am

TruckerRon wrote:
Ozchrissy wrote: If you go to YouTube and search for "heart arrhythmia dance" you'll find several... maybe even the one you previously found.
eeekeeek : I can never get that time back punisher
Maureen

Moved to North Dallas, TX in 2013 (But a Jersey Girl at heart :) )
---------------------------------------------------------------------------------------------
St Jude ICD implanted April 2015; removed June 2015 due to infection
July 2015 new St Jude ICD and leads implanted
---------------------------------------------------------------------------------------------
Diagnosed LBBB March 2015, Congestive Heart Failure
Multiple VTs identified first by 30 day monitor, then in the ER, and during the week in hospital...
Diagnosed with Left Ventricular Non Compaction (Cardiomyopathy)

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TruckerRon
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Re: Heart Trials currently running in USA

Post by TruckerRon » December 23rd, 2015, 11:30 am

mcmoyer wrote:
TruckerRon wrote:
Ozchrissy wrote: If you go to YouTube and search for "heart arrhythmia dance" you'll find several... maybe even the one you previously found.
eeekeeek : I can never get that time back punisher
Nor will the idiots who stand in line for days before a movie premieres!
:mutt:
TruckerRon -- Received Minion I on 17 Sep 2009, Minion II on 26 Jan 2015

Non-ischemic cardiomyopathy
Medtronic Viva XT CRT-D
No shocks yet...
My intro is at: http://www.icdsupportgroup.org/board/vi ... 099#p57099

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