New to the group

All posts from Jan 1, 2010 to Dec. 31, 2010

Moderators: Suzanne, ~guin

amberfitz
Posts: 11
Joined: June 8th, 2010, 3:27 pm

New to the group

Post by amberfitz » November 18th, 2010, 10:10 am

Hello. I am Amber and new to the group. I am 32 years old, married with 3 children. I was diagnosed with dilated cardiomyopathy September 09. My LVEF was at 30. At first they tried to improve my heart function with medication. After getting a repeat ECHO done in May 10, they doctor informed me that nothing improved. So on June 6th, I had my ICD implanted. The doctor said that he had a hard time placing the left lead because of the damage to my heart.
I went in to see my EP on August 19 for a routine check of my ICD and he turned the left lead off because it was making my diaphram jump (which was making me nausiated).
I went in for a repeat ECHO on October 25 and nothing has improved. My LVEF is still at 30 and my heart is still enlarged. I am now scheduled to see a heart surgeon on 11/23/10 to see if he can place the left lead in a different area so they can turn it back on.

annette8
Posts: 444
Joined: April 27th, 2010, 11:52 pm
Location: Maryland

Re: New to the group

Post by annette8 » November 18th, 2010, 1:56 pm

I assume you have a biventricular pacemaker\icd. The left lead is difficult to place in some people. Hopefully the surgeon will succeed. I had one placed in May this year. Echo due in April. I wish you good luck and WELCOME. I have gotten so much help here. annette howdywelcome :armdown:
annette, age 65y on 8/8/16
nurse, quit work 12/25/10,
retired?????
------------------------------
symptoms-SOB, fatique, cough
dx CHF, LBBB, EF 12-15% 3/10 per echo
EF confirmed by cardiac cath, no blockages
medtronic consulta inserted CRT-D 5/10
ALL the CHF MEDS started 3/10
Now on Coreg 12.mg bid, losartan 50mg hs
EF now 49% per echo 4/2015
Medtronic Viva CRT-P inserted 1/12/17

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kristinzzz
Posts: 388
Joined: October 24th, 2009, 6:54 pm

Re: New to the group

Post by kristinzzz » November 18th, 2010, 8:15 pm

Welcome!!!!!



dancehearts
ICD Medtronic Implanted October 2005
2nd ICD Medtronic Protecta Implanted June 2012 (Fidelis Lead removed/fractured)
3rd ICD ST JUDE implanted in April 2018
10 Shock Storm/ Feb. 2008
Hypertrophic Obstructive Cardiomyopathy

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Suzanne
Posts: 3587
Joined: October 1st, 2009, 8:42 pm
Location: Toronto, Ontario, Canada

Re: New to the group

Post by Suzanne » November 18th, 2010, 8:19 pm

Hi Amber and welcome :) I wish you good luck at your appointment next week.
~ Suzanne ~

St Jude ICD and Lead Implanted Feb.20/09
8 Shock Storm March 21/09
Lead Dislodged, so Replaced with Medtronic Lead June 16/09
ICD and Lead Explanted Nov.23/09
Medtronic Reveal XT (Cardiac Monitor) Implanted Jan.25/10...explanted and new one reinserted on July 21/11

Cardiac Monitor explanted Sept.9/14

MichaelP

Re: New to the group

Post by MichaelP » November 18th, 2010, 9:07 pm

wavhi wavhi wavhi Welcome to the forum! wavhi wavhi wavhi

Let us know how your next Doctors appointment goes!

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Greg a
Posts: 694
Joined: June 4th, 2010, 10:24 pm
Location: Kitchener, Ontario, Canada
Contact:

Re: New to the group

Post by Greg a » November 19th, 2010, 1:11 am

amberfitz wrote:Hello. I am Amber and new to the group. I am 32 years old, married with 3 children. I was diagnosed with dilated cardiomyopathy September 09. My LVEF was at 30. At first they tried to improve my heart function with medication. After getting a repeat ECHO done in May 10, they doctor informed me that nothing improved. So on June 6th, I had my ICD implanted. The doctor said that he had a hard time placing the left lead because of the damage to my heart.
I went in to see my EP on August 19 for a routine check of my ICD and he turned the left lead off because it was making my diaphram jump (which was making me nausiated).
I went in for a repeat ECHO on October 25 and nothing has improved. My LVEF is still at 30 and my heart is still enlarged. I am now scheduled to see a heart surgeon on 11/23/10 to see if he can place the left lead in a different area so they can turn it back on.
I reposted this for you into the introduction thread

WELCOME TO OUR ICD FAMILY
howdywelcome
:armdown:
wavhi
LIVE
LOVE
LAUGH
ITS ALL GOOD

Image
ABOUT ME:
http://www.icdsupportgroup.org/board/vi ... &start=570

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freckles1880
Moderator
Posts: 8664
Joined: April 18th, 2009, 7:19 pm
Location: Broomfield, Colorado

Re: New to the group

Post by freckles1880 » November 19th, 2010, 9:06 am

howdywelcome From Colorado. I hope they get the leads in place correctly and you start feeling better. wavhi
Bob

Medtronic-Visia AF implanted 7-8-2016 stayed with the with 6947 Sprint Quattro Secure lead. Original ICD implant 2-4-2009. ICD turned off 10-6-17 as stage 4 lung cancer taking over.
Major heart attack, carcinogenic shock and quad bypass 10-13-08 post myocardial infarction, old inferior MI complicated by shock and CHF, combined, Atherosclerosis, abdominal aortic Aneurysm, Seroma 7 cm, left leg. Stent in the left main vein 10-7-2014

My "Wardens" are my bride of 54+ years and my daughters.

amberfitz
Posts: 11
Joined: June 8th, 2010, 3:27 pm

Re: New to the group

Post by amberfitz » December 8th, 2010, 10:55 am

Just an update. I am scheduled for surgery on December 10th

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Leah
Posts: 1299
Joined: May 1st, 2008, 1:50 pm

Re: New to the group

Post by Leah » December 8th, 2010, 3:54 pm

wow that is quick. Best of luck to you, Take Care
Leah

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SuzieQ
Posts: 417
Joined: June 16th, 2010, 5:45 am

Re: New to the group

Post by SuzieQ » December 8th, 2010, 5:10 pm

We all know how vulnerable you feel right now and wish you the very, very best.
2/11/09 MI, SCD
2/12/09 2 stents in LAD, 1 drug eluting, 1 bare metal
2/17/09 Implanted Medtronic Virtuoso II DR
AFib, Leaky Mitral Valve
My intro at http://www.icdsupportgroup.org/board/vi ... 650#p61650

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ROBO Pop
Posts: 4502
Joined: September 14th, 2009, 2:36 pm
Location: the Oval Office

Re: New to the group

Post by ROBO Pop » December 8th, 2010, 5:22 pm

Welcome, glad you found the group.

We're keeping you in our thoughts, and will be here for you when the surgery is completed.

Best wishes
Broken Heart
Nobody has ever survived life, but I'm trying...
My story and sticking to it
http://www.icdsupportgroup.org/board/vi ... 97&p=91375

Mark

Re: New to the group

Post by Mark » December 8th, 2010, 5:40 pm

howdywelcome Amber! Sometimes it is a long process to get your condition to improve both mentally and physically, but this group of people are the best for support and advice. I truly hope your doctor can get things straightened around for you and that you can rest bit easier. And when it gets to be too much, you always have a nice family here that can help. Keep us informed.

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Suzanne
Posts: 3587
Joined: October 1st, 2009, 8:42 pm
Location: Toronto, Ontario, Canada

Re: New to the group

Post by Suzanne » December 8th, 2010, 7:37 pm

I pray all goes well for you Amber.
~ Suzanne ~

St Jude ICD and Lead Implanted Feb.20/09
8 Shock Storm March 21/09
Lead Dislodged, so Replaced with Medtronic Lead June 16/09
ICD and Lead Explanted Nov.23/09
Medtronic Reveal XT (Cardiac Monitor) Implanted Jan.25/10...explanted and new one reinserted on July 21/11

Cardiac Monitor explanted Sept.9/14

rclarke6

Re: New to the group

Post by rclarke6 » December 8th, 2010, 8:17 pm

Welcome to the group Amber, you will be in our thoughts, especially on the 10th of December. The Group is always here for you when you need support. :D
howdywelcome

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jverhey
Posts: 46
Joined: August 24th, 2010, 3:00 am

Re: New to the group

Post by jverhey » December 9th, 2010, 12:53 am

Wishing you the best for this and you have plenty of people here to talk to about it. The new ones like me and the old pros who have a lot of experience here. wavhi harharhar wavhi
Medtronic Secura, Watanabe Hospital Osaka Japan 9\30\2010
Brugada Syndrome, No treatment available and can drop dead at any time
So I got that going for me

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