old device new story

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Moderators: freckles1880, Suzanne, ~guin, Eric

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Hook
Posts: 65
Joined: August 30th, 2010, 8:02 am
Location: Nashville, TN

old device new story

Post by Hook » August 5th, 2017, 4:07 pm

I've had my St Jude ICD about 7 years, not so much as a pacing assist. I've always had random PVCs and some minor vtac runs, but all below theropy threshold.

I entered a heart failure clinical trial, and 8 days into taking the drug I get wacked. The worst part is I was on a business trip having dinner with a client. He had to drive me to the ER. The even worse part is I had to go to Jethro Memorial, where the only cardiologist was this little jerk from Venezuela. This hospital had none of my six heart med, and claimed to have no way to fetch them.

Either way, I held the trial drug and they started me on amioderone.

Anyone else had experience with a new drug in this way. Who knows, it may have just been my time.
Todd Taylor
St Judes ICD, implanted 9/14/2010 Vanderbilt

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freckles1880
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Joined: April 18th, 2009, 7:19 pm
Location: Broomfield, Colorado

Re: old device new story

Post by freckles1880 » August 5th, 2017, 4:36 pm

I am sorry you went through this issue. Unfortunately that is one of the issues of getting into a clinical trial. I am not opposed to clinical trials but we never know what to expect. I hope all will be back to your normal soon.

wavhi
Bob

Medtronic-Visia AF implanted 7-8-2016 stayed with the with 6947 Sprint Quattro Secure lead. Original ICD implant 2-4-2009. ICD turned off 10-6-17 as stage 4 lung cancer taking over.
Major heart attack, carcinogenic shock and quad bypass 10-13-08 post myocardial infarction, old inferior MI complicated by shock and CHF, combined, Atherosclerosis, abdominal aortic Aneurysm, Seroma 7 cm, left leg. Stent in the left main vein 10-7-2014

My "Wardens" are my bride of 53+ years and my eldest daughter.

mykidsmom
Posts: 3126
Joined: February 9th, 2012, 5:09 pm

Re: old device new story

Post by mykidsmom » August 8th, 2017, 1:04 am

Hope alls ok with you? im leery of these trials...Ive avoided them like the plague...my theory is with medication, if it aint broke...dont fix it right..and i had a pretty similar instance happen myself a few years ago on a trial for Beta blockers.........are you doing ok with the amioderone???
I think.....Therefore I am.!!!!!

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