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It is currently September 6th, 2010, 5:38 am
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zmom
Joined: January 11th, 2010, 7:32 pm Posts: 105 Location: Ohio, USA
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 Re: I need a hug
Here's a bouquet of  and a great big from us. For our family we realize that for each step forward we sometimes have to take a few steps back to regroup. Sounds like you have wonderful support and we'll definitely keep you in our thoughts. 
_________________ Janet "ZMom" Mother of 16 yr old son with St Jude Medical V168 ICD and Ventricular Tachycardia (VT) with CPVT Zack's motto: "Making mistakes simply means you are learning faster"
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| March 5th, 2010, 2:41 pm |
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cash2304
Joined: March 1st, 2010, 1:23 am Posts: 32 Location: East Central, IL
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 Re: I need a hug
 & Dancing Bunny want's to dance with you. 
_________________ St. Jude ICD Aug. 21, 2009 Tetrolgy of Fallott | Aortic Insufficiency Left Ventricular Cardiomyopathy Proximal Ventricular Tachycardia | EF: 30 Courage is being scared to death - but saddling up anyway. --John Wayne When I wake up in the morning, if I don't see candles and smell flowers I get out of bed. --Red Skelton Blog: http://www.CashsRamblingMind.blogspot.com
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| March 5th, 2010, 2:48 pm |
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Kramozzam
Site Admin/Mod
Joined: May 31st, 2006, 8:58 am Posts: 3638 Location: Upstate, New York
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 Re: I need a hug
Oh man, I am sorry I am so late in this thread!  I really have been probably pitying myself and forget to get into the meat of things here with this wonderful ICD family, but know Elizabeth that I care very much and am so happy that EVERYONE here has jumped in for support- that's what makes this board great! So I do wanna give y6ou a hug  and an extra one for being late, because you deserve it.... 
_________________ ~Mark"The mind is like a parachute. It doesn't work unless it's open"- Frank Zappa ICD implanted Feb. 2006: Medtronic Intrinsic, 2 leads- St.Jude 1388tc (Atrial), 6947 Medtronic Sprint Quattro Secure (RV/SVC).....5 shocks Too many meds to list- want to know? Just ask...
Run Matilda, Run!
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| March 5th, 2010, 3:08 pm |
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LisaAye
Joined: March 19th, 2009, 5:35 pm Posts: 111
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 Re: I need a hug
Hi Eliazbeth, I'm sorry to hear about your awful dr visit. I think waiting 6 months to see what you want to do is a great idea. I'm sure you will make the right decision for your body. I think the negative things they tell us is so mental for all of us. I know my last vist to the EP he talked about how he felt I needed a third lead, but I don't have the symtoms for one yet. Now since that last visit, I get more nervous and worry more than I did before. If he would have said well everything looks great, I'm telling you I would have felt alot better, our minds are so powerful. Just hang in there and your heart will tell you what you should do.
I'm sending a BIG HUG your way!!
Lisa Aye
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| March 5th, 2010, 4:29 pm |
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DonnaB
Joined: June 8th, 2008, 2:05 pm Posts: 521
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 Re: I need a hug
Elizabeth I am so sorry that you are going through so much.It makes me want to open up a great big ole can of whoop ass and use it on your doc. I can sure understand you wanting to wait if you can,and to enjoy your summer as much as possible. Many many cyber hugs coming your way from Arkansas. DonnaB
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| March 5th, 2010, 5:15 pm |
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whiteheadjf
Joined: March 15th, 2009, 7:19 pm Posts: 473 Location: Hartsville, SC
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 Re: I need a hug
Hang in there Elizabeth. One things for sure - you must have a pretty tough heart to go through all of that. Also, it sounds like you were pretty asymptomatic (which is very good news) until they tried to electrocute you. Apparently the lead was giving a confusing readingto the tech; that and the mis-location of the lead could have been a dual whammy for you. Hopefully you will get a good Dr. and opinion and they will have you back "dancin with the stars" 
_________________ non-ischemic cardiomyopathy Medtronic Maximo II Feb. 24, 2009 1st shock: Aug. 16, 2009 "life is like a box of chocolates; you eat too much and your tummy hurts"
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| March 6th, 2010, 9:13 am |
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Elizabeth Martineau
Joined: May 14th, 2009, 10:23 am Posts: 1956 Location: Charlotte, NC
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 Re: I need a hug
Thanks, everyone. You guys are great. Yes, Whitehead, I vaguely remember him saying something to the nurse in the hallway (before the electrocution) about there being "cross-talk", whatever that means.
Had something new (for me) last night. I was laying in bed with pillows behind me like always, watching TV, and boom! Felt like somebody slugged me in the back, one time, but really really big. So I figured it can't be a shock since it didn't feel like a shock, just a great big thunk. I see the doc in a week so I figure I can wait to see what he says, as I felt okay before and after.
_________________ Elizabeth
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| March 6th, 2010, 10:24 am |
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zmom
Joined: January 11th, 2010, 7:32 pm Posts: 105 Location: Ohio, USA
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 Re: I need a hug
Hi again, Elizabeth, After following this post, I recall the first week that Zack was in PICU. Perhaps it was the "shock" of the events that I didn't question what or how they were treating Zack. After a week of just nodding and accepting their procedures, a situation arose that resulted in a turn for the worst. While in PICU Zack had serveral different doctors (cardiology, ep, pulminary, neurology and several others) every time we asked a question from say the EP dr, he'd say ask the pulminology or vice versa, or the neuro doctor would defer to a different dr. -all circling each other) we were getting no where and Zack was getting worse). At that time I realized (for Zack's benefit and our family's) that I needed to question their every decision and to ask them why and make them give explanations. As the saying goes "knowlege is wealth". It wasn't until after we got a meeting set up with all of them together, did all the doctors start to work together. So I guess what I'm trying to say is... make the doctors become responsible to YOU until you feel they've answered your questions and can provide you with the best treatment. Sometimes our own intuition knows best. Keep strong and keep digging for answers. Don't feel like you're at a  because our prayers and thoughts will be with you,
_________________ Janet "ZMom" Mother of 16 yr old son with St Jude Medical V168 ICD and Ventricular Tachycardia (VT) with CPVT Zack's motto: "Making mistakes simply means you are learning faster"
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| March 6th, 2010, 12:00 pm |
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Doug
Joined: February 13th, 2010, 4:06 pm Posts: 24 Location: D.C.
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 Re: I need a hug
Elizabeth, Here's a long distance hug. 
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| March 6th, 2010, 5:51 pm |
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efpat
Joined: July 29th, 2009, 7:50 pm Posts: 199 Location: New Jersey
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 Re: I need a hug
One more hug from me, too. So sorry you are going through this. Hang in there, Evan
_________________ Cardiomyopathy, LBBB, St. Jude Promote Plus CRT-D Installed Nov 9, 2009, QRS Duration - 180, EF - 25-30
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| March 6th, 2010, 9:52 pm |
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*karenb*
Joined: November 14th, 2005, 5:24 pm Posts: 461 Location: UK
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 Re: I need a hug
I am so sorry that you ae going through all of this.
(((((Elizabeth)))))
Karen xxx
_________________ CPVT, ICD 2003, currently Guidant Vitality EL 09/06 45, married. Psychologist/Teacher
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| March 7th, 2010, 4:49 am |
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Carl Portman
Joined: April 6th, 2009, 4:28 pm Posts: 313 Location: Banbury, England.
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 Re: I need a hug
Elizabeth, I have only just read your post after returning from Norway. I am desperately sorry to read what has been happening. It must be nothing short of devastating. What I feel compelled to say to you is this: I don't know you that well, but I know enough of you to know that this is (yet) another hurdle (not a barrier!) in your life that you will have to jump. And jump it you will, because you are Elizabeth Martineau. With such news comes a natural shock, then a kind of denial but as acceptance manifests itself you will find a way forward. Get yourself prepared to best jump that hurdle. You are not in a worse situation - you are in a NEW situation and you must deal with it to move forward and get back on track. I know you can. Everyone here is right next to you. We are proud of you Elizabeth. Whatever they may or may not do to you physically cannot and will not change the way that you are; inspirational, uplifting, engaging and above all a beautiful person. None of that can be taken away with a scalpel. Love and mega hugs from England, where tiny birds are singing their glorious songs from the springtime treetops. Doubt is the mountain which faith can move.Carpe DiemCarl 
_________________ Right Ventricular Dysplasia St. Jude ICD implanted 28 September 2009 Sotalol and Mexilitine tablets
Carpe Diem
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| March 7th, 2010, 5:12 am |
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Elizabeth Martineau
Joined: May 14th, 2009, 10:23 am Posts: 1956 Location: Charlotte, NC
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 Re: I need a hug
Thanks everybody. I do appreciate the encouragement and advice. I'm not really good at being assertive but I'm trying to get better, but I do have my girls who are quite good at that, and they will help me out. Ha, ha, I raised them to question everything and be assertive, all the things I wasn't (:
Love you guys, I'll keep everyone informed of what's going on, just in case anyone finds themselves in a similar situation.
Oh, and Carl, you will have to tell us about the trip to Norway (:
_________________ Elizabeth
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| March 7th, 2010, 9:30 am |
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BrianR.
Joined: March 2nd, 2010, 9:15 pm Posts: 5
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 Re: I need a hug
I am sorry that you are going thought this. Stay strong...stay positive!
Brian R.
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| March 7th, 2010, 10:40 pm |
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Elizabeth Martineau
Joined: May 14th, 2009, 10:23 am Posts: 1956 Location: Charlotte, NC
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 Re: I need a hug
Thanks, Brian (:
_________________ Elizabeth
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| March 8th, 2010, 8:08 am |
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