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 I need a hug 
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Joined: January 11th, 2010, 7:32 pm
Posts: 105
Location: Ohio, USA
Post Re: I need a hug
consolsmile
Here's a bouquet of
:balloons: and a great big
:hugg:
from us.

For our family we realize that for each step forward we sometimes have to take a few steps back to regroup. Sounds like you have wonderful support and we'll definitely keep you in our thoughts.
consolsmile

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Janet "ZMom"
Mother of 16 yr old son with
St Jude Medical V168 ICD and
Ventricular Tachycardia (VT) with CPVT
Zack's motto:
"Making mistakes simply means you are learning faster"


March 5th, 2010, 2:41 pm
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Joined: March 1st, 2010, 1:23 am
Posts: 32
Location: East Central, IL
Post Re: I need a hug
:hugg: & Dancing Bunny want's to dance with you. bunnydan

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St. Jude ICD Aug. 21, 2009
Tetrolgy of Fallott | Aortic Insufficiency
Left Ventricular Cardiomyopathy
Proximal Ventricular Tachycardia | EF: 30

Courage is being scared to death - but saddling up anyway. --John Wayne
When I wake up in the morning, if I don't see candles and smell flowers I get out of bed. --Red Skelton

Blog: http://www.CashsRamblingMind.blogspot.com


March 5th, 2010, 2:48 pm
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Joined: May 31st, 2006, 8:58 am
Posts: 3638
Location: Upstate, New York
Post Re: I need a hug
Oh man,


I am sorry I am so late in this thread! :( I really have been probably pitying myself and forget to get into the meat of things here with this wonderful ICD family, but know Elizabeth that I care very much and am so happy that EVERYONE here has jumped in for support- that's what makes this board great! So I do wanna give y6ou a hug :hugg: :hugg: and an extra one for being late, because you deserve it.... :balloons:

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~Mark
"The mind is like a parachute. It doesn't work unless it's open"- Frank Zappa

ICD implanted Feb. 2006: Medtronic Intrinsic, 2 leads- St.Jude 1388tc (Atrial), 6947 Medtronic Sprint Quattro Secure (RV/SVC).....5 shocks
Too many meds to list- want to know? Just ask...
Image Run Matilda, Run!

March 5th, 2010, 3:08 pm
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Joined: March 19th, 2009, 5:35 pm
Posts: 111
Post Re: I need a hug
Hi Eliazbeth,
I'm sorry to hear about your awful dr visit. I think waiting 6 months to see what you want to do is a great idea.
I'm sure you will make the right decision for your body. I think the negative things they tell us is so mental for all of us. I know my last vist to the EP he talked about how he felt I needed a third lead, but I don't have the symtoms for one yet. Now since that last visit, I get more nervous and worry more than I did before. If he would have said well everything looks great, I'm telling you I would have felt alot better, our minds are so powerful.
Just hang in there and your heart will tell you what you should do.

I'm sending a BIG HUG your way!!

Lisa Aye


March 5th, 2010, 4:29 pm
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Joined: June 8th, 2008, 2:05 pm
Posts: 521
Post Re: I need a hug
Elizabeth I am so sorry that you are going through so much.It makes me want to open up a great big ole can of whoop ass and use it on your doc.

I can sure understand you wanting to wait if you can,and to enjoy your summer as much as possible.

Many many cyber hugs coming your way from Arkansas.

:hugg: :hugg:

DonnaB


March 5th, 2010, 5:15 pm
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Joined: March 15th, 2009, 7:19 pm
Posts: 473
Location: Hartsville, SC
Post Re: I need a hug
Hang in there Elizabeth. One things for sure - you must have a pretty tough heart to go through all of that. Also, it sounds like you were pretty asymptomatic (which is very good news) until they tried to electrocute you. Apparently the lead was giving a confusing readingto the tech; that and the mis-location of the lead could have been a dual whammy for you. Hopefully you will get a good Dr. and opinion and they will have you back "dancin with the stars" :runn:

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non-ischemic cardiomyopathy
Medtronic Maximo II Feb. 24, 2009
1st shock: Aug. 16, 2009
"life is like a box of chocolates; you eat too much and your tummy hurts"


March 6th, 2010, 9:13 am
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Joined: May 14th, 2009, 10:23 am
Posts: 1956
Location: Charlotte, NC
Post Re: I need a hug
Thanks, everyone. You guys are great. Yes, Whitehead, I vaguely remember him saying something to the nurse in the hallway (before the electrocution) about there being "cross-talk", whatever that means.

Had something new (for me) last night. I was laying in bed with pillows behind me like always, watching TV, and boom! Felt like somebody slugged me in the back, one time, but really really big. So I figured it can't be a shock since it didn't feel like a shock, just a great big thunk. I see the doc in a week so I figure I can wait to see what he says, as I felt okay before and after.

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Elizabeth


March 6th, 2010, 10:24 am
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Joined: January 11th, 2010, 7:32 pm
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Location: Ohio, USA
Post Re: I need a hug
Hi again, Elizabeth,

After following this post, I recall the first week that Zack was in PICU. Perhaps it was the "shock" of the events that I didn't question what or how they were treating Zack. After a week of just nodding and accepting their procedures, a situation arose that resulted in a turn for the worst. While in PICU Zack had serveral different doctors (cardiology, ep, pulminary, neurology and several others) every time we asked a question from say the EP dr, he'd say ask the pulminology or vice versa, or the neuro doctor would defer to a different dr. -all circling each other) we were getting no where and Zack was getting worse). At that time I realized (for Zack's benefit and our family's) that I needed to question their every decision and to ask them why and make them give explanations. As the saying goes "knowlege is wealth". It wasn't until after we got a meeting set up with all of them together, did all the doctors start to work together. So I guess what I'm trying to say is... make the doctors become responsible to YOU until you feel they've answered your questions and can provide you with the best treatment. Sometimes our own intuition knows best. Keep strong and keep digging for answers. Don't feel like you're at a
:bang: because our prayers and thoughts will be with you,

_________________
Janet "ZMom"
Mother of 16 yr old son with
St Jude Medical V168 ICD and
Ventricular Tachycardia (VT) with CPVT
Zack's motto:
"Making mistakes simply means you are learning faster"


March 6th, 2010, 12:00 pm
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Joined: February 13th, 2010, 4:06 pm
Posts: 24
Location: D.C.
Post Re: I need a hug
Elizabeth,

Here's a long distance hug. consolsmile


March 6th, 2010, 5:51 pm
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Joined: July 29th, 2009, 7:50 pm
Posts: 199
Location: New Jersey
Post Re: I need a hug
:hugg:
One more hug from me, too.

So sorry you are going through this.

Hang in there,

Evan

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Cardiomyopathy, LBBB, St. Jude Promote Plus CRT-D Installed Nov 9, 2009, QRS Duration - 180, EF - 25-30


March 6th, 2010, 9:52 pm
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Joined: November 14th, 2005, 5:24 pm
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Location: UK
Post Re: I need a hug
I am so sorry that you ae going through all of this.

(((((Elizabeth)))))


Karen xxx

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CPVT, ICD 2003, currently Guidant Vitality EL 09/06
45, married. Psychologist/Teacher


March 7th, 2010, 4:49 am
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Joined: April 6th, 2009, 4:28 pm
Posts: 313
Location: Banbury, England.
Post Re: I need a hug
Elizabeth,

I have only just read your post after returning from Norway. I am desperately sorry to read what has been happening. It must be nothing short of devastating. What I feel compelled to say to you is this:

I don't know you that well, but I know enough of you to know that this is (yet) another hurdle (not a barrier!) in your life that you will have to jump. And jump it you will, because you are Elizabeth Martineau.

With such news comes a natural shock, then a kind of denial but as acceptance manifests itself you will find a way forward. Get yourself prepared to best jump that hurdle. You are not in a worse situation - you are in a NEW situation and you must deal with it to move forward and get back on track.

I know you can. Everyone here is right next to you. We are proud of you Elizabeth. Whatever they may or may not do to you physically cannot and will not change the way that you are; inspirational, uplifting, engaging and above all a beautiful person. None of that can be taken away with a scalpel.

Love and mega hugs from England, where tiny birds are singing their glorious songs from the springtime treetops.


Doubt is the mountain which faith can move.


Carpe Diem

Carl :hugg:

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Right Ventricular Dysplasia
St. Jude ICD implanted 28 September 2009
Sotalol and Mexilitine tablets

Carpe Diem


March 7th, 2010, 5:12 am
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Joined: May 14th, 2009, 10:23 am
Posts: 1956
Location: Charlotte, NC
Post Re: I need a hug
Thanks everybody. I do appreciate the encouragement and advice. I'm not really good at being assertive but I'm trying to get better, but I do have my girls who are
quite good at that, and they will help me out. Ha, ha, I raised them to question everything and be assertive, all the things I wasn't (:

Love you guys, I'll keep everyone informed of what's going on, just in case anyone
finds themselves in a similar situation.

Oh, and Carl, you will have to tell us about the trip to Norway (:

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Elizabeth


March 7th, 2010, 9:30 am
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Joined: March 2nd, 2010, 9:15 pm
Posts: 5
Post Re: I need a hug
I am sorry that you are going thought this. Stay strong...stay positive!

Brian R.


March 7th, 2010, 10:40 pm
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Joined: May 14th, 2009, 10:23 am
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Location: Charlotte, NC
Post Re: I need a hug
Thanks, Brian (:

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Elizabeth


March 8th, 2010, 8:08 am
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