Interesting NYT articles (heart failure, med costs)

Posts from Jan. 1, 2018 to the present. Plus important announcements. (ICD warning sounds)

Moderator: Moderators

Post Reply
garya
Posts: 577
Joined: September 10th, 2010, 9:04 pm

Interesting NYT articles (heart failure, med costs)

Post by garya » October 5th, 2018, 1:42 pm

Found these recently, thought they might stimulate some interesting board discussions

The first, cholesterol article, seems mainly about cost of drugs. Interesting that the people referenced are from states most opposed to policies that would start to address the issues. Sort of like the farmers bitching about socialism while asking for there government subsidy check. Decide on your own:
https://www.nytimes.com/2018/10/02/heal ... ss&emc=rss

.
The second article appears to be a ROBO Pop special. What to do about heart failure and turning off defib etc.
https://www.nytimes.com/2017/11/06/heal ... pe=Article

.

User avatar
ROBO Pop
Posts: 4511
Joined: September 14th, 2009, 2:36 pm
Location: the Oval Office

Re: Interesting NYT articles (heart failure, med costs)

Post by ROBO Pop » October 5th, 2018, 3:23 pm

Thanks, timely post. The second article is good, as far as it goes, but just scratches the surface and doesn't answer critical questions like when...when to cry Uncle.

I have spent a lot of time and thought explaining to my wife why it's time, what will happen, the ramifications of turning it off, and not.

She gets it but then as time passes, doubts creep back in and the discussion starts anew. I am uncertain how compelling an argument I can continue to make as my mind deteriorates. I understand how she feels and her desire to extend my life as long as possible but ...well we all have our problems, you don't need to hear mine.
Broken Heart
Nobody has ever survived life, but I'm trying...
My story and sticking to it
http://www.icdsupportgroup.org/board/vi ... 97&p=91375

User avatar
mrag
Posts: 4382
Joined: February 10th, 2009, 4:56 pm
Location: The Former Mushroom Capital of World when America was great

Re: Interesting NYT articles (heart failure, med costs)

Post by mrag » October 5th, 2018, 4:17 pm

well we all have our problems, you don't need to hear mine.
Au contraire mon ami. Isn't the entire purpose of this site to share our problems? And in great detail (assuming one has the ability to write complete sentences)?

So how soon do you expect to keel over and die after your device is deactivated?
"The greatest enemy of knowledge is not ignorance, it is the illusion of knowledge" S Hawking

User avatar
Ozchrissy
Posts: 7279
Joined: September 27th, 2008, 9:28 am
Location: Australian

Re: Interesting NYT articles (heart failure, med costs)

Post by Ozchrissy » October 5th, 2018, 9:44 pm

That article is brilliant, it looks like they were listening in on our conversations, but like Robbo said, they do not give a definitive time frame. I have got the "there is nothing more we can do for you" speel from my cardiologist on my last 3 visits, (9 months) and I now realize that maybe he was grasping at straws my last visit because he came out of left field with the "bone cancer" diagnosis. He may be as confused about all this as I am. After all I think I have got the maximum work done on my heart that can be done in Australia and on all the meds recommended, I am not eligible for transplant as I have other issues with other organs, and frankly a life lived on an LVAD, is not what I want. So it might be just as hard for him to deal with as it is for me.

At the moment I am just doing the day to day stuff, not really worrying anymore about the fact that I can't do all I want to do, but I do not class myself in the category that my quality of life is not acceptable. Like the other day, I did get a shock that I couldn't do what I thought I should be able to do, and realized I have deteriorated quite a bit over the past 8 months, but I am still relatively content.

Robbo, I really do understand your dilemma. If you had asked me this question only 4 weeks ago, when I was in physical pain, then I would have had a different response. I was visualizing me wheel chair bound and nursing home material. BUT, my pain is now under control and I have been able to do things, so that thought has gone away. I am not giving much thought to end of life at the moment, and that is reassuring.

I think we live this merry go round constantly, I know I have for years, for example when I even got it in writing. when I needed my valve replacement the cracked ribs way and wasn't well enough, (3 years ago) but got the transcathater procedure on a trial. I am sure there are others on here who do the same. It is a big step to take that final decision to turn off our defib, because as we all know, things may improve next week. Just as the article says, the ups and downs make these decisions very problematic because of the nature of Heart Failure.

:big-hug: :big-hug: :big-hug: :big-hug:
“I am not what happened to me, I am what I choose to become.” Carl Jung

Diagnosed with cardiomyopathy in 10/99
LBBB & VT diagnosed Feb 06
Guidant Biventricular Pacer ICD inserted Feb 06: Boston Scientific Incepta CRT-D inserted May, 2012
Oesophageal Cancer, 2012, Gall Bladder & Septicemia 2014 resulting in VFib and severe heart damage
Bare Metal Stent May, 2012 Mitral Valve replaced 2015
Meds: Entresto, Bicard, Coralan, Eurtorxsiq, Frusehexl, Spiractin, Sigmaxin, Creon, Warfarin,
Appropriate Shocks for Ventricular VFib.

Post Reply