OT-Update on Freckles

Posts from Jan. 1, 2018 to the present. Plus important announcements. (ICD warning sounds)

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Re: OT-Update on Freckles

Post by luvmydogs » January 10th, 2018, 10:48 am

I hear you Bob, cancer sucks big time. I often wonder why people try so hard with all the treatments. And I've been through it, so I can speak from experience.
Joanne (aka Jo)

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Re: OT-Update on Freckles

Post by abas » January 10th, 2018, 5:02 pm

Bob, I have been following your plight from afar trying to find proper words. I don't think there are any beyond fond thoughts of you and for your family in these trying times. All my best, Abigail

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Re: OT-Update on Freckles

Post by ROBO Pop » January 11th, 2018, 12:36 pm

Bob, never had GERD (AKA acid reflux) until my heart adventure began. Now it hits with vengence. We tried OTC remedies and even snake oil. My cardio finally prescribed Pantoprazole (similar to some OTC) and that works great.

What I really wanted to share is that sometimes when the GERD hits the chest pain is 12 on a 10 scale. It's as bad, maybe worse than my Angina. Might be worth a try for you.

Then again leaky squeaky valves will cause significant chest pain as well, at least thats what they tell me. For that I take Ranexa and Nitro. Doesn't always keep it at bay but certainly reduces the frequency.

If all else fails, go ahead and cut loose that fart. The release of pressure will allieviate the pain, though you might not want ti inhale
Broken Heart
Nobody has ever survived life, but I'm trying...
My story and sticking to it
http://www.icdsupportgroup.org/board/vi ... 97&p=91375

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Re: OT-Update on Freckles

Post by Ozchrissy » January 11th, 2018, 5:20 pm

Bob, I am an old hand at Gastric Reflux. I take a proton pump inhibitor and that works very well. But if you really need a quick fix, there is also a suckable prescription pill you can get. Nothing worse than reflux, mine used to hit my lungs as well, and believe me the experience is not nice, and with your current situation, that would be bad.
“I am not what happened to me, I am what I choose to become.” Carl Jung

Diagnosed with cardiomyopathy in 10/99
LBBB & VT diagnosed Feb 06
Guidant Biventricular Pacer ICD inserted Feb 06: Boston Scientific Incepta CRT-D inserted May, 2012
Oesophageal Cancer, 2012, Gall Bladder & Septicemia 2014 resulting in VFib and severe heart damage
Bare Metal Stent May, 2012 Mitral Valve replaced 2015
Meds: Entresto, Bicard, Coralan, Eurtorxsiq, Frusehexl, Spiractin, Sigmaxin, Creon, Warfarin,
Appropriate Shocks for Ventricular VFib.

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Re: OT-Update on Freckles

Post by Lazydays » January 14th, 2018, 1:55 pm

Bob, I haven't visited the site for many months and am truly saddened to learn of your deteriorating health. None of us will get out of this living thing alive, of that there is no choice. However the way in which we mentally deal with our demise can be a matter of choice and I would like you to know that your posts on this subject are inspirational. I thank you for sharing your journey. I would also like to thank you for your years of work on this site. I joined this site in my hour of need, when I was mentally fragile to deal with all the unknown issues that I was to face with my new ICD. Thanks to you and your predecessors on this board I was able to reach a place where I could face the future with confidence. There I'll always be hiccups along the way but I am in a better place now than I was when I joined. Finally my best wishes to you and your family. Thank you for being there for us.

Life Can Sometimes Be A Shocking Experience

March 1994 - MI
June 2003 - Stent
July 2008 - VT - Stent & ICD fitted
Dec 2008 - Appropriate shock
Sept 2011 - Ventricular Ablation (failed)
May 2012 - Ventricular Ablation
May 2013 - Ventricular Ablation (failed to induce VT )
June 2014 - Ventricular Ablation
25mg Spirolactone
5mg Bisoprolol
10mg Ramipril
40mg Pravastatin
Disopyramide - 400 mg

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Re: OT-Update on Freckles

Post by freckles1880 » 56 minutes ago

Since my “water boarding” issue we have gotten the oxygen unit working well. I believe it was a problem with the water tank having a clog or? New tank and all is well, I actually get more oxygen also so it may have been that clog.

I am doing all my new meds now and they do make me sleep more and I am somewhat unstable at times. They do control most of the pain though.
I still have very little strength so it does get hard to do much of what I liked to do in the past and with oxygen all the time I am restricted to read and think about how I can still get the information I need to get to those who will carry on my projects.

I think more now about who/what I won’t be seeing any more and am trying to contact some old buddies, just to say hi.

My Warden is learning a lot about what I have on my computer that can help her. I have been a Lotus 123 user since it came out so converting to Excel is hard for me by giving up Lotus. As I have said before I have made notes and files with instructions. She is now doing much of what I have done in the past, as far as record keeping. That again take away from my daily work. Planning for the non-future for me is still hard as I know there will be something I forgot.

Still don’t need pity, just your support.

I have also made some minor changes to the site by getting rid of members whom have not been active at all since 2012. Five years with no activity does not help us. I did NOT delete any posts they may have made, that way the history is still there. Some members have passed away and we did not know it.

Medtronic-Visia AF implanted 7-8-2016 stayed with the with 6947 Sprint Quattro Secure lead. Original ICD implant 2-4-2009. ICD turned off 10-6-17 as stage 4 lung cancer taking over.
Major heart attack, carcinogenic shock and quad bypass 10-13-08 post myocardial infarction, old inferior MI complicated by shock and CHF, combined, Atherosclerosis, abdominal aortic Aneurysm, Seroma 7 cm, left leg. Stent in the left main vein 10-7-2014

My "Wardens" are my bride of 53+ years and my eldest daughter.

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