Stacey, Ron as you know I am facing this dilemma now. I had a LONG chat the other day with my Boston Scientific Technician who I have been dealing with for the past 6 years. I was talking to him about the last days, and there is no issue with the D being turned off on the device, but he said that the rest of the functions need to be turned off as well. Mine is a CRT-D and he presumed at the start that I knew that my heart would slowly die, as in my pulse would go very low, and the device would bring me back up. This was something I was not aware of, I always like you presumed that it would be an SCA, but apparently it is the opposite. As for the meds, I wouldn't stop them as quickly as I am taking Warfarin and that could almost guarantee a stroke and the unknown consequences.
I had reason to talk to him on these occasions because I felt something which I presumed was a fast rate, but when he looked I had dropped very low. So at the moment when I get my turns and I know the device is kicking in, it is not from the fast but the slow heart beat.
Now this is heresay but is as I heard it from the tech, but it is worth clarifying with your cardiologist or tech. I have decided when I am in need of Hospitalization that is when I will have the device turned off. Not before.
“I am not what happened to me, I am what I choose to become.” Carl Jung
Diagnosed with cardiomyopathy in 10/99
LBBB & VT diagnosed Feb 06
Guidant Biventricular Pacer ICD inserted Feb 06: Boston Scientific Incepta CRT-D inserted May, 2012
Oesophageal Cancer, 2012, Gall Bladder & Septicemia 2014 resulting in VFib and severe heart damage
Bare Metal Stent May, 2012 Mitral Valve replaced 2015
Meds: Entresto, Bicard, Coralan, Eurtorxsiq, Frusehexl, Spiractin, Sigmaxin, Creon, Warfarin,
Appropriate Shocks for Ventricular VFib.